000			04212nam a22005175i 4500
001			978-0-387-93872-1
003			DE-He213
005			20251006084432.0
007			cr nn 008mamaa
008			100301s2009 xxu| s |||| 0|eng d
020			_a9780387938721
020			_a99780387938721
024	7		_a10.1007/978-0-387-93872-1 _2doi
082	0	4	_a610.1 _223
082	0	4	_a174.2 _223
100	1		_aSolbakk, Jan Helge. _eeditor.
245	1	4	_aThe Ethics of Research Biobanking _h[electronic resource] / _cedited by Jan Helge Solbakk, Søren Holm, Bjørn Hofmann.
264		1	_aBoston, MA : _bSpringer US : _bImprint: Springer, _c2009.
300			_aXVIII, 358p. 3 illus. _bonline resource.
336			_atext _btxt _2rdacontent
337			_acomputer _bc _2rdamedia
338			_aonline resource _bcr _2rdacarrier
347			_atext file _bPDF _2rda
505	0		_aResearch Biobanking: The Traditional Approach -- Consent to Biobank Research: One Size Fits All? -- What No One Knows Cannot Hurt You: The Limits of Informed Consent in the Emerging World of Biobanking -- Users and Uses of the Biopolitics of Consent: A Study of DNA Banks -- Information Rights on the Edge of Ignorance -- The Dubious Uniqueness of Genetic Information -- Duties and Rights of Biobank Participants: Principled Autonomy, Consent, Voluntariness and Privacy -- Biobanking and Disclosure of Research Results: Addressing the Tension Between Professional Boundaries and Moral Intuition -- Biobanks and Our Common Good -- Trust, Distrust and Co-production: The Relationship Between Research Biobanks and Donors -- Scientific Citizenship, Benefit, and Protection in Population-Based Research -- Research Biobanking: Towards a New Conceptual Approach -- Mapping the Language of Research Biobanking: An Analogical Approach -- The Use of Analogical Reasoning in Umbilical Cord Blood Biobanking -- The Alexandria Plan: Creating Libraries for Human Tissue Research and Therapeutic Use -- The Art of Biocollections -- The Health Dugnad: Biobank Participation as the Solidary Pursuit of the Common Good -- Embodied Gifting: Reflections on the Role of Information in Biobank Recruitment -- Conscription to Biobank Research? -- Ownership Rights in Research Biobanks: Do We Need a New Kind of 'Biological Property'? -- Legal Challenges and Strategies in the Regulation of Research Biobanking -- Annexation of Life: The Biopolitics of Industrial Biology -- In the Ruins of Babel: Should Biobank Regulations be Harmonized?.
520			_aThe Ethics of Research Biobanking investigates some of the ethical, legal and social challenges raised by research biobanking. In the first part of the book the authors pursue the different regulatory options envisaged within a normative terrain dictated by different conceptions and interpretations of the informed consent doctrine. In the second part a completely new approach is explored. The authors investigate the conceptual potential of different analogies outside medical research used to depict people's change and exchange of valuables between themselves and a common institution. The book is aimed at both academic and professional audiences (biobank curators, biobank researchers, ethicists, gene-epidemiologists, health law experts, philosophers, social scientists and advanced and graduate students in the relevant disciplines) as well as health and research regulators, ministries, politicians and the general public.
650		0	_aMEDICINE.
650		0	_aHUMAN GENETICS.
650		0	_aEPIDEMIOLOGY.
650		0	_aMEDICAL ETHICS.
650		0	_aCYTOLOGY.
650	1	4	_aMEDICINE & PUBLIC HEALTH.
650	2	4	_aTHEORY OF MEDICINE/BIOETHICS.
650	2	4	_aMEDICINE/PUBLIC HEALTH, GENERAL.
650	2	4	_aHUMAN GENETICS.
650	2	4	_aCELL BIOLOGY.
650	2	4	_aEPIDEMIOLOGY.
700	1		_aHolm, Søren. _eeditor.
700	1		_aHofmann, Bjørn. _eeditor.
710	2		_aSpringerLink (Online service)
773	0		_tSpringer eBooks
776	0	8	_iPrinted edition: _z9780387938714
856	4	0	_uhttp://dx.doi.org/10.1007/978-0-387-93872-1 _zVer el texto completo en las instalaciones del CICY
912			_aZDB-2-SME
942			_2ddc _cER
999			_c59547 _d59547